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Articles: Ups and Downs With Kev's Progress
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Tuesday, July 24, 2007 - 09:01 AM, (901 Reads)
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Two lots of surgery, responding nods, wriggling around and a clonic tonic seizure to top it off!!
Thursday saw Kev off to theatre and had a cranioplasty (third of skull replaced). Early hours after surgery went well, however Kevin's CAT scan showed hydocephaly (fluid build up around brain).
After deteriaoration early hours of Saturday mornig it was decided to take Kev back to theatre to re-remove the skull. We were understandably very upset, this happens to only 5-10% of clients. So the waiting and watching started again, this really takes the toll on us.
It has been great to have Jay, Masami, Aska, Zoe, Dad and Margret with us to support and provide some distarction for us.
Sunday was a day of Kev being heavily sedated until around 4pm. He then became alert and was moving both legs and was attempting to pull himself up off the bed!! This was great movement and thought all was very impressive until we saw what the next day was to bring.
Monday was started as an amazing day with Kev indicating the need to go to the loo, the "obeying commands" to grab hold of the bedside and roll to the right with very litle assistance. That afternoon Kev was moved from the trauma room to a "normal" room. This means we can visit at 8am instead of 10am.
Kevin suprised me by looking me in the eye and responding appropriately with a nod to two questions!! He also continued to roll and move heaps around the bed. He is able to scratch his head and face with precision and shows good fine motor skills. I went home happy after giving Kev a wash, massage, toothbrush and settled him into the room. After the upset and set back I felt a little happier.
A phone call was received at 11:30 to inform me that Kevin had had a seizure which required an medical emergency call. He settled after awhile and eventually regained his GCS of 10-11. Unfortunately he reacted with a rash to the anti-seizure medication, this has now been stopped and he has been sedated until the nueroligst decides what to do.
We await to see if the hydrocephelis will subside naturally or he may need to have a permanent shunt put in place to drain the fluid.
Finishing on a good note the speech therapist is willing to commence some oral food soon and the trachy has been de-cuffed for a week and an half!
Love to all, Alison
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Re: Ups and Downs With Kev's Progress
(Score: 1)
by Kerry on Jul 24, 2007 - 01:12 PM
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Yes, when I read that Kev's skull replacement had to be reversed I imagined you must have been very upset. However, remember that this was a very early replacement, even though the swelling had subsided. With regard to the seizure, I have been expecting this to happen, and so it is no great surprise -- seizures are a very common occurrence in TBI and you should expect more. All very frightening for you though. The seizure, in particular (disregarding the surgery!), will have been very tiring though, so he will need some time to recover well and get back to where he was beforehand. Just remember that it is often one step forward and one (or even more) step back, but overall he has made a huge number of steps forward. There will be more setbacks to come too, but he is in the right place for everything to be dealt with efficiently.
On the positive side, Kevin's responses to you etc. are very encouraging indeed! Having witnessed this progress though must have made the other setbacks particularly upsetting. Keep your spirits up!!! Love to you all. xxxxxx
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Re: Ups and Downs With Kev's Progress
(Score: 1)
by joy on Jul 24, 2007 - 07:56 PM
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You really are all going through the mill! Still as Kerry says it is not surprising, and overall it looks like a big step forward.
The staff at work often ask me about Kevin's progress and are always pleased to hear of yet another positive development!
Much love to you all,
Joy
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Re: Ups and Downs With Kev's Progress
(Score: 1)
by glenda on Jul 24, 2007 - 08:09 PM
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At least we know that Kev is doing what would be expected of most TBI pts as Kerry said. He really is displaying some very encouraging progress otherwise. Hang in there and know that we are all with you every step of the way.
Love and hugs to all. Glenda and Sid xxxx
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